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A Better Tomorrow

Pervasive Developmental Disorders; Autism, it Cannot be Ignored; Issa’s Story

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BY SIMONE SMITH

Good Week Toronto Caribbean readers. I am happy that many of you have been following this series, Pervasive Development Disorders; Autism, it cannot be ignored.

Some great things have come from writing this series. One of the greatest outcomes is that there is a better understanding of what Pervasive Developmental Disorders are. We are learning together that not everyone communicates in this world the same way. Many of us take for granted how easy it is for us to go to the store, pick up something, communicate with the sales clerk, pay for the item and leave. This sequence of events can be very difficult for some people, and many of them do not even know why these tasks are so difficult. My joy is researching and learning alongside the readers; this week, I will be featuring one of my families who have had to face Autism head on. I am proud of them because they have faced it and learned from it. I have had the opportunity to work closely with the family, and their story continues to move me. I would like to present to you, Issa’s Story.

Issa Ibrahim is a friendly, fun loving child who is full of energy and loves to be around people. Issa was developing at the same level as his cohorts, but his mother Marian noticed that at the age of three, his words began to disappear. This worried her and caused a great deal of anxiety as she watched her son lose himself in his own world. Instead of ignoring the issue that was in front of her, she decided to educate herself on what was happening to her child. Marian and her older children decided that they would do some research and discovered that Issa did in fact have Autism. As we know, Autism runs on a spectrum and Issa was diagnosed with moderate to severe Autism.

With moderate to severe Autism, a developing child has extreme difficulties expressing themselves and this can lead to self-injurious behavior. Behavior issues like biting, screaming, temper tantrums and excessive crying are prevalent with children who have moderate to severe Autism. When Marian noticed that this behavior was beginning to spiral out of control, she decided to look for help outside the home. This brought her to Erin Oaks. It was time for her to learn more about the disorder, which would allow her to work with Issa at home.

Marian started to attend parent coaching sessions along with seminars that were put on by the staff at Erin Oaks. Now, this was not an easy task for her. She also had to take one of her other children, who happens to be homeschooled, to extracurricular activities in Toronto. This meant that she was commuting back and forth from Toronto to Oakville three to four times a day. We all know what this can be like. It takes on average forty five to ninety minutes getting from midtown to the suburbs. Marian did this willingly, without complaints five days a week and continued to attend seminars in the evening. She was determined to develop strategies that would enable her to teach Issa at home. She prided herself on her ability to learn the strategies, and then transfer them to working with Issa.

We have watched Issa go from a child who would be unable to go out in public without causing a scene, to being able to go to Tim Horton’s with mom and their parenting coach Nate. Nate raves about Issa’s ability to stand in line, order with mom what he wants and leave the Tim Horton’s like any young growing boy can with his family. Mom continues to credit Nate and the other supportive workers at Erin Oaks for helping her with Issa. They still have some challenges to face, but with such a dedicated family and a strong support system, Issa will be able to develop into an independent man.

Here is what I would like everyone to take from this story. We all have struggles. We all feel like our struggles are unique; in a way they are, but we must understand that there are others experiencing events in their lives that are similar to yours. The more we are able to share our stories and open up about some of the issues occurring in our community, the better it will be for everyone. Sharing our stories can not only help others, but help to strengthen the community from the inside out. Let us continue to share with each other, encourage each other and seek refuge with each other. Stay blessed readers and enjoy your week! Until next time, stay focused on positive thoughts and know that your situation does not determine your outcome.

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A Better Tomorrow

A personal search for meaning; a perspective on pain and pain expressed

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Photo Credit: Arina Krasnikova

BY SIMONE J. SMITH

Every now and then, I segway to give my readers perspective on the reason why I have been writing this story for over two years in the Toronto Caribbean Newspaper.

For those who don’t know, the title of my column is called, “A Better Tomorrow.” I initially started to write this as a medium of inspiration; I wanted readers to know that even in the darkest of times, there is always a way to make tomorrow better.

I don’t know how many of you are familiar with the book, “Man’s Search for Meaning.” Psychiatrist and Neurologist Viktor Frankl (1905-1997) wrote about his ordeal as a concentration camp inmate during the Second World War. What he observed was that those who survived longest in concentration camps were not those who were physically strong, but those who retained a sense of control over their environment.

I bring this incredibly poignant novel up, because for many of us, the last few years also allowed us to observe the intricacies of societal behaviour. It was rough for us: families being separated, lockdowns, and businesses closing down. Of course then there were the countless deaths of loved ones, fear of sickness, mainstream media and governmental forces propagating messages of despair that kept us all in our heads, and out of our hearts.

What Panama did was prepare me for this pandemic. I know what it feels like to feel helpless, afraid, unsure of what the next day will bring. The pandemic was on a macro scale, but this experience became macro for me.

All throughout this, all I could do was hope for, “A Better Tomorrow.” I turned my pain into words, and shared these words with all of you. I also learned that all of us have ways that we share our pain with the world. It is not always an artistic beautiful expression; sometimes it comes out as anger, rage, abuse; all human beings, to some degree or another, develop ways of dealing with pain very early on. It is an innate capacity we utilize to adapt and survive this world. It is how we protect our psyche, and our emotions.

Our nature is very similar to plants; we shape ourselves and adapt to our environment. Those that adapt to their environment survive; they twist, torque, and reach in order to get the sunlight and nutrients needed. This can be difficult if you are a plant amongst weeds: there is so much more reaching that you have to do, and it is tiring. It takes something special to move you forward; something that reminds you that what you want in life is not impossible to get.

This is why I share my story. I do it to let readers into my world; have them experience my pain with me, and work with me through my recovery. We all have difficult circumstances in life, and there are those times where giving up is easy. I want you to take a second right now and think about one of your experiences that seemed impossible to overcome, but somehow you did it.

Think about how you felt once you had dealt with the rawness of the situation.

As you are thinking about your experience, I want you to think about how it is making you feel having to think about it.

It is all perspective; regardless of what has happened to you, placing it into perspective is very important. We have to find a way to navigate the noise, see past your current situation, create ways to deal with your pain.

I have learned that sharing my story has helped others open up about their experiences, speak through their trauma and come to terms with it.

I hope you take the time to answer some of the questions I presented earlier, but now, back to the story….

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A Better Tomorrow

For the first time in a long time I felt seen; The story behind M

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Photo by Pixabay - Ink_Lee0

BY SIMONE J. SMITH

I sat in the steam room and reflected on my meeting with M. “He is so damn short,” I said to myself. He was no more than 5’2, tiny, but he did have a nice body. There was no way that I would ever get involved with someone who was 5’2. I shook my head. This was not the point; I was here because he said that he wanted to work with me, not date me. I had to keep my head on straight, but the way he looked at me, spoke to me.

I snapped out of my thoughts and went to take a shower. After getting dressed I joined M outside. He was waiting by the door on his phone. When he saw me, this scintillating smile flashed on his face.

“Hey Sim! I thought you might be a little hungry after our workout. Let’s go grab something to eat up the street. We can talk about the work that I would like for you to do.”

I was hesitant, but I thought to myself, what is the harm? I was hungry, and if he was buying, I would let him.

“Sure why not! You owe me after nearly killing me out there.”

M laughed and took my bag from me. “Let’s go Sim!”

He waved at the staff and we headed out.

We found a restaurant up the street, not too far from the gym. After we had been seated, the discussions just happened. We talked about everything. Family, where he was born, children. We had a lot in common, especially our love for Detroit. He had been born and raised there, and I had lived in Windsor on and off for 10 years. Some of my fondest memories were those years in Windsor, going to Detroit, working in Detroit, learning in Detroit.

Before I knew it, we had been talking for about three hours. I was four beers in and stuffed from my fish and chips. I looked at the time.

“What are your plans for tomorrow Sim,” M asked?

“Well, I am on my grind right now. I have had a rough few months, and I am trying to get my footing back. This is why we are here; you shared that you want me to help you with your work?”

“Well before we go there,” M replied, “Tell me what has been going on lately?”

I looked down and fought back tears. I wasn’t ready to speak on my recent calamities.

“Sim, it’s okay. Trust me! I have gone through a lot the last few years, and I know what it is like to shut down. Talk to me; sometimes you just have to get it out.”

His invitation to share moved me; I looked up at him and he was sitting there, looking at me. His calmness opened me like a flower, and I started to speak. I told him everything about Panama, my relationship with D, how badly things had been going in my relationship. Once the floodgates were open I couldn’t stop talking. After another hour I finally relented. I sat there quietly, mentally kicking myself for over-sharing.

“Sim,” M said after a few moments of silence. “We are more alike than you think. You see, there is a reason why I reached out to you. You are a beautiful soul, and it is hard to find people to relate to.”

M then started to share his story with me. He also had been in prison, and charged for the same things that I had been accused of. I listened keenly as he told me the experience, soaking up the fact that someone else got me, and understood what I had been going through. The shame. The need to hate myself for what I had done, the pain I had caused my parents, finally someone innerstood me.

We talked until the restaurant closed. It had to be one of the most impactful nights for me since I had gotten out of Panama. I felt seen.

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A Better Tomorrow

Things were about to get interesting, and not in a good way; The story behind M

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Photo by LOGAN WEAVER | @LGNWVR on Unsplash

BY SIMONE J. SMITH

I will never forget the first time that I met M. He had asked me to meet him at a gym that he was training at down in the North York area. I remember being excited getting ready to go down there. I wasn’t sure why, but when I looked at the picture on LinkedIn, I was quickly made aware.

That skin…

Those lips…

Famous last words; shake my head.

When I arrived at the gym, I parked the car, and gave him a call as he had instructed.

“I’m here!”

“Amazing! I am coming out to get you. Are you dressed to work out?”

It wasn’t until right then that I realized that he had an accent. Was he American? Something about the slight twang in his voice made me nostalgic.

“I am dressed. I am coming in. Do I have to say anything to the person at the front desk?”

“Nah! I am coming out to get you.”

I turned off the car and grabbed my gym bag. Naturally, I had put on my tightest pair of tights, and one of my favourite crop tops. Not exactly a workout outfit, but I had no problem getting sweaty in this.

I made my way towards the door, opened it up, and stepped inside.

The gym was buzzing with noise; weights clanging, music playing, people chatting loudly. I looked around for M, but didn’t see him.

“Hey Simone!”

I turned around and standing in front of me was that handsome face, the beautiful skin, and those big, beautiful lips, on the shortest man I had ever seen. I tried not to make a face, but I don’t know if I held my surprise. The picture on LinkedIn must have been taken from a low angle, because he did not look short in the picture. He could not be more than 4’2. He actually was 4’2. Imagine how it looked with me standing in front of him at 5’9.

“Hey Simone!”

I realized that I had not responded.

“Hello M. Nice to meet you.” I couldn’t stop staring at the top of his head.

“You ready for a workout. I want to show you what I can do for you, and maybe you can help me. You are here to help aren’t you,” he said with a smirk?

I had to laugh. “Direct me to the change room, and I will be right out to help you help me.”

“Head to the back of the gym. The women’s locker room is on the left-hand side. I will be waiting for you.”

I made my way back smiling to myself. What was this little man going to show me? I was pretty athletic and had been working out for a few years. As I changed my clothes, I reflected on the fact that I had assumed he was tall. That was my own fault. I couldn’t blame him for his height. Plus, this was business. Nothing else. I looked in the mirror; “Alright Simone. Let’s do this.”

OMG!

The workout with M nearly killed me. He showed me a few simple things, and honestly it nearly killed me. After 45 minutes he had me sweating and on the floor.

“Wow M! That was amazing. I was here thinking that I was in shape. You definitely showed me,” I said laughing.

“Hey, don’t let my size fool you. I have made bigger men than you cry after working out with me. Go ahead and shower up. Let’s grab something to eat. Put some fuel in your body.”

“Nothing would be better.” M helped me off the floor and I headed back into the change room to get ready.

Well, that was certainly interesting. He had completely caught me off guard. That would not be the first or last time M did that.

Things were about to get interesting, and not in a good way…

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