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SICKLE CELL DAY – SCAGO celebrates first official National Sickle Cell Awareness Day

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BY: DELLIA RISMAY 

June 19th , 2018, marked the first recognized National Sickle Cell Awareness Day in Canada. The country is the first in the world to legally recognize the day. To honor its significance, the Sickle Cell Awareness Group of Ontario, also known as SCAGO, invited those affected by the disease, including patients and their loved ones, medical professionals, and dignitaries to take part in a flag raising ceremony and reception at Toronto City Hall.

Lanre Tunji-Ajayi, the CEO of SCAGO, welcomed the crowd on the podium roof of Toronto City Hall, where all were gathered to watch the flag of the Sickle Cell Disease Association of Canada (or SCDAC) being raised. SCAGO is a member of the national body, which regulates patient advocacy throughout Canada.

Dignitaries present for the event included Lloyd Wilks, Toronto’s Consul General of Jamaica, Derrick James, Toronto’s Consul General of Grenada, Jane Cordy, Senator for Nova Scotia, and James Pasternak, a councilor for the city of Toronto. Also present were Dr. Isaac Odame, Chair of the Global Sickle Cell Network, Kabu Asante, President of the African-Canadian Social Development Council, Joseph Bodun Macaulay, and Jenny Gumbs, President/CEO and Chair of SCDAC, respectively.

With the introduction of National Sickle Cell Awareness Day, those in the sickle cell community hope to increase visibility and knowledge of the disease. Groups that have been advocating for more knowledge of sickle cell disease, such as SCDAC and its member organizations like SCAGO have been working towards making National Sickle Cell Awareness Day a reality. Lanre told Toronto Caribbean Newspaper about how important it is to have an officially recognized day for sickle cell disease.

“It is monumental, not only for the Awareness Group of Ontario alone, but also for the Sickle Cell Disease Association of Canada that worked very hard on this bill, and also for the general sickle cell community,” she explained. “It’s a day that will open up a lot of opportunities for us in terms of awareness creating, in terms of education. Many of the care providers in this province still don’t have strong knowledge around sickle cell disease. When our patients present for treatment, they sometimes tag them as drug seekers. So, having more opportunities to raise awareness will really expose sickle cell disease to more people.”

Bill S-211 is the Act responsible for getting June 19th recognized as National Sickle Cell Awareness Day. Senator Jane Cordy and Member of Parliament for Dartmouth-Cole Harbour Darren Fisher introduced it in the Senate and the House of Commons, respectively. It received Royal Assent and became law on December 12th, 2017.

Senator Cordy expressed her satisfaction at the bill being passed but also stressed that more work needs to be done. “We’ll celebrate today, but there is a whole lot left to do. We need newborn screening for all babies,” she said to the crowd during her speech at the event’s reception.

The event also featured short speeches from several people in the sickle cell community. Patients, their family members, and doctors described their experiences with the disease, namely the struggles they experience to get healthcare practitioners more familiar with how painful a sickle cell crisis can be, as well as the need for a standard of care at doctor’s offices and hospitals across the country.

MaryAnn Gordon, who is the mother of a child with sickle cell disease, spoke to the crowd about the challenges her family faces, especially when it comes to taking her child to hospitals other than The Hospital for Sick Children. She recalled the times she had to take her child to a different healthcare facility, and her apprehension of the kind of treatment her child would receive there.

Doctor Jacob Pendergrast, who hosted the event’s reception, also shared his desire for a more uniform standard of care when it comes to treatment of sickle cell disease, and the treatment of patients in crisis. Dr. Pendergrast treats patients with sickle cell disease as well as other disorders in Toronto General Hospital’s Red Blood Cell Disorders Clinic.

Sickle cell disease, the most common genetic disease in the world, is a hereditary blood disorder that results in red blood cells becoming sickle-shaped instead of round due to an abnormal form of hemoglobin. A healthy red blood cell carries oxygen around the body, while the red blood cells of a person with sickle cell disease can become stiff and block blood vessels. When these blockages occur, they can cause pain and damage to vital organs in the body. If a blockage becomes severe, it becomes a sickle cell crisis. Immediate treatment is vital in these instances, as long-term organ damage can occur from a crisis. A sickle cell crisis cannot always be avoided, but the risk of them can be lowered if the individual avoids triggers such as extreme changes in temperatures and dehydration.

Sickle cell disease can be found in people from all walks of life, but it is more commonly found in those with African, Caribbean, Middle Eastern, Mediterranean, South American, Central American, or Southeast Asian origins. It can also be found in those with roots in the Western Pacific Region. In Ontario, it is estimated that there are over 2,500 people living with sickle cell disease.

One of SCAGO’s goals is to educate the public about sickle cell disease and encourage everyone to get tested, especially those who are planning to start a family. Because carriers of the sickle cell trait are generally healthy and do not exhibit any symptoms, many carriers do not know about their status until they have a child with another person that is a carrier, and the child is born with sickle cell disease. SCAGO estimates that a staggering 80% of African-Canadians carry the sickle cell trait. Lanre urges everyone to find out if they are a carrier.

“Having a child with sickle cell disease is a very expensive venture that you don’t get into ignorantly. You may be a carrier and want to have your children with another carrier of the sickle cell gene, but at least it’s best to know before you go into that relationship to know what the prospect of you having a child with sickle cell is, and the options are that are available for you. But you won’t know all of that if you don’t get tested and know your own status first.”

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Canada is Sinking – Is there a correlation between the rising economic costs, and the siphoning of funds to other sources in Canada?

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BY ADRIAN REECE

At some point Toronto was a city that people enjoyed living in. Recent political leadership at every level of government has caused citizens to consider moving out of the country as a whole. The high cost of living, coupled with the difficulty affording housing, and remote work becoming more regular has made the rest of the world seem much more appealing for Canadians as a whole.

Many countries are offering travel perks and visas to travelers in the west, to encourage them to visit, or to even move into their countries. Costa Rica, Japan, and France currently have travel perks and have opened their borders to make it easier to enter. Specifically for Canadians and even more specifically Torontonians who work remotely, are looking to countries and cities with lower costs of living. The Canadian dollar goes far in other parts of the world.

We owe the struggling economy to a few factors. Political leadership has greatly impacted the state of Canada, immigration policies that have changed over the years have caused stress on Canadian citizens.

In 2023, the federal government released its new Immigration Levels Plan to welcome 485,000 permanent residents in 2024 and 500,000 in 2025 and 2026. This announcement came on the heels of an Environics public opinion survey revealing a significant increase in the number of Canadians who believe the country accepts too many immigrants. That marks a dramatic reversal from a year ago, when support for immigration levels stood at an all-time high.

The Trudeau led government has held true to their commitment to bring in millions of immigrants in a short span of time. Housing policy is draining the income of Canadians, and political debates do not provide any real answers towards understanding what is going on in the country. Consistent political scandals regarding Trudeau overspending, and not adhering to budgets, and using money that was originally allocated for certain things. Trudeau was audited and it was found that $123 million was given to ineligible businesses, or projects that should have never been awarded at all. This is one in a long list of Trudeau scandals that have been a part of Canada political identity for the last nine years.

Trudeau’s government has even siphoned off funds to their personal businesses, after audits by the auditor general, we have seen too many inconsistencies with the funding of the Trudeau government in misusing funds as well as money disappearing into places that it should not be going.

In June of this year, the auditor general (AG) released two reports about: improper contracting practices, conflict of interest, and funding provided for ineligible projects. What these reports brought to light is an unpleasant reality; politicians and bureaucrats in Ottawa do not always act in the best interest of Canadians.

According to the first AG report, Sustainable Development Technology Canada (SDTC), the federal agency responsible for funding green technology projects, demonstrated “significant lapses… in governance and stewardship of public funds.” Nearly 20% of the SDTC projects examined by the AG were in fact ineligible (based on the government’s own rules) for funding, with a total price tag of $59 million. There were also 90 instances where the SDTC ignored conflict of interest provisions while awarding $76 million to various projects. Indeed, the AG found 63 cases where SDTC agency directors voted in favour of payments to companies in which they had declared interest.

The second AG report focused on 97 contracts totaling $209 million awarded by the federal government to the McKinsey & Company consulting firm from 2011 to 2023. According to the AG, the government demonstrated “frequent disregard for procurement policies and guidance and that contracting practices often did not demonstrate value for money.” About 70% of these contracts were awarded non-competitively, meaning no other companies were permitted to bid on the contracts. Interesting!

These findings also follow an earlier report in February that found the federal government “repeatedly failed to follow good management practices in the: contracting, development, and implementation” of the ArriveCAN mobile app, which cost Canadian taxpayers at least $59.5 million.

Is there a correlation between the rising economic costs, and the siphoning of funds to other sources in Canada? Potentially, it will take a lot more investigation to confirm if that is really the case. However, Canadians can see that there has been a drastic change in the economy since the Trudeau government has come into power.

For governments to work there needs to be transparency, and there has been a lack there of in regard to our political leadership in the last few years. There are too many scandals and too many mishaps with money. Too many policies that do not benefit the citizenry, and not enough effort made to rectify the sinking economy.

Canada cannot continue to stay in these dire straits, we are sinking, and leadership plays a big role in the state of the country. We won’t see changes unless we demand it, we can take a page out of France’s method of protest; other countries have set a precedent of what their expectations are, and Canadians need to do the same. They need to demand change and implement strategies to achieve it. Within acceptable methods of protest there exists a strategy and method of changing the nature of Canada’s problems, but it starts with the citizenry. Coming together is the greatest power we have, and we need to utilize it.

REFERENCES:

https://www.environicsinstitute.org/projects/project-details/public-opinion-about-immigration-refugees

https://www.canada.ca/en/immigration-refugees-citizenship/news/notices/supplementary-immigration-levels-2023-2025.html

https://www.oag-bvg.gc.ca/internet/English/parl_oag_202402_01_e_44428.html

https://www.oag-bvg.gc.ca/internet/English/parl_oag_202406_06_e_44493.html

https://www.oag-bvg.gc.ca/internet/English/parl_oag_202406_e_44491.html

https://www.fraserinstitute.org/article/scathing-auditor-general-reports-underscore-political-realities

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The Jamaica Food and Drink Festival – where every bite tells a story, and every sip celebrates Jamaica’s vibrant soul

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BY SIMONE J. SMITH

What if I told you that Visa is offering two amazing opportunities that YOU, our loyal readers have an opportunity to take part in? For one of our lucky readers, you have a chance to:

  • Win a trip to Trinidad Carnival 2025
  • Win a trip to Jamaica

“What is this all about Simone,” you might be asking? Well, the Jamaica Food and Drink Festival (JFDF) turns 10 this year, and Visa International is thrilled to be part of the celebration once again. Welcome to the heart of Jamaica’s culinary playground – the Jamaica Food and Drink Festival, where flavours, culture, and music blend into one unforgettable celebration.

Step into the lively Craft Market downtown, where the spirit of Jamaica comes alive. Here, they celebrate the island’s rich history and vibrant flavours – an ode to the past. Guests get a chance to immerse themselves in the legacy of festival favourites like: Crisp, Chopstix, Pork Palooza, and Picante – all in one electrifying space.

Taste, sip, and groove your way through the night, reliving fond festival memories while savouring the global influences that have shaped the iconic dishes we love today – no passport required (except to travel of course)!

As the hot days turn into steamy nights, and steamy nights turn into sweltering days, what better way to close out the festivities than with one last delectable event? The finale is not just a celebration, but a reflection of Jamaica’s culinary renaissance. After four unforgettable days, guests get a chance to honour the island’s: finest chefs, mixologists, and artisans who have made this festival a true showcase of creativity and passion.

Naturally, the festival had to find accommodations that match its prestige, and the only hotels of choice this year are: The Jamaica Pegasus Hotel and The Courtleigh Hotel & Suites. At the Jamaica Pegasus Hotel, the Caribbean’s most distinguished address, you will experience the perfect blend of elegance and island charm. Nestled in the heart of New Kingston, surrounded by lush gardens and views of the Caribbean Sea, this 17-storey gem is where business meets leisure in true Jamaican style. You also have the option of immersing yourself in the timeless charm of The Courtleigh Hotel & Suites, a true jewel of Jamaica’s capital city. With spacious accommodations, award-winning dining, and all the modern comforts, it is the perfect way to end your festival experience.

Waldemar Cordero, Marketing Senior Director for Visa in the Caribbean and Central America, expressed his excitement about being involved in the festival’s decade-long run. “We’re really excited to be part of the 10th staging of the Jamaica Food and Drink Festival. It’s amazing to see how far this festival has come, and we’re proud to have been part of the journey over the last 6 years. This festival isn’t just about food, it’s about celebrating Jamaica’s rich culture and the incredible talent that drives it.”

Visa’s partnership with JFDF has grown over the years, evolving from a traditional sponsorship into a dynamic collaboration that enhances the festival experience for everyone. “Our relationship with the Jamaica Food and Drink Festival has deepened over time,” said Waldemar. “We’ve moved from simply being a sponsor to becoming the main partner, working closely with the organizers to bring fresh, exciting elements to the event each year. This time around, we’re especially excited about the initiatives we’re rolling out that will make it easier and more enjoyable for attendees to experience all that the festival has to offer.”

Visa is excited to enhance the celebration of the Jamaica Food and Drink Festival’s milestone 10th year by offering an exclusive hospitality package to Trinidad Carnival 2025. One lucky Visa cardholder who purchases festival tickets between October 16th and November 9th, 2024, will win this incredible experience. This offering includes: two economy class tickets from Kingston, Jamaica to Port of Spain, Trinidad; six nights of luxury accommodation at the Hyatt Regency; and comprehensive airport transfers and event transportation. The winner and their guest will enjoy: inclusive meals, stylish Monday Wear and Carnival Tuesday costumes, and access to premier events such as Brian Lara’s Event and PinkNicTT. Additionally, they will be treated to glamour make-up and photos. This package promises to deliver an unforgettable festival experience and celebrate the unified Caribbean culture in style.

In addition, one lucky winner from our Caribbean neighbour Trinidad and Tobago, who uses the First Citizens Bank card in Trinidad, will win a trip for two to the Food and Drink Festival in Jamaica. This is an all-expense paid trip for two with the winners to ensure the festival and enjoy scenic places in Jamaica such as Dunn’s River Falls and Port Royal. Ready for that almost winter getaway? Visit https://jafoodanddrink.com/ for more details. Good luck!

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Welcome to the Black Scholars Institute—where excellence thrives, and liberation is pursued

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BY SIMONE J. SMITH

At the heart of the University of Windsor’s campus, centrally located in the lower level of the CAW Student Centre, lies a space dedicated to fostering: African-Caribbean excellence, academic growth, and community empowerment: The Black Scholars Institute, or BSI.

The BSI Lounge is more than just a meeting place. It is a safe and welcoming space for African/-Caribbean faculty, staff, and students—a venue that fosters not only academic engagement, but community connection. Here, important university and local events, aligned with the Institute’s mission and values, take place.

The Black Scholars Institute is a multidisciplinary research institute—a home for African-Caribbean scholars at UWindsor. It is dedicated to advancing Black excellence and liberation through scholarship, research, and community engagement. The Institute’s work enriches teaching, learning, and social justice efforts across the University, with a focus on making an impact nationally and globally.

BSI hosts a range of weekly programs that encourage meaningful dialogue and academic collaboration. Events such as “Think Tank Thursday” provide a platform for African-Caribbean faculty and students to come together, exchange ideas, and discuss relevant research and current events. For those who are deep in their academic work, “Just Write” sessions offer dedicated time for focused writing in a supportive environment. “Coffee and Convo,” a collaboration with Leddy Library, creates space to explore Black literature and hold thought-provoking discussions around important topics.

Graduate students are invited to participate in student saloons, where they present their works-in-progress in a safe, inclusive space, where they can receive valuable feedback from peers and faculty members alike. Additionally, the “Black Research Spotlight” shines a light on the groundbreaking work of African Caribbean scholars, providing them with a platform to showcase their research and innovations.

In recognition of the challenges posed by systemic anti-Black racism, the BSI offers its members a membership with the National Center for Faculty Development and Diversity, providing on-demand access to a wealth of professional development resources. This is just one of the ways BSI ensures its scholars are well-equipped to thrive and succeed in their academic careers. As a research institute, BSI is committed to supporting Black Studies and promoting excellence in scholarships. One vital aspect of this is the awarding of grants to Black scholars. These grants are instrumental in advancing research that is often overlooked in traditional funding competitions.

While visiting the University earlier this month, I learned more about some of the challenges that have been faced in opening BSI. The establishment of this initiative was approved by the University of Windsor’s Senate on October 7th, 2022. The initiative is in alignment with the University’s commitment to the Scarborough Charter (utoronto.ca) on anti-Black racism and Black inclusion in Canadian higher education. In 2023, the University of Windsor (UWindsor) announced their new academic home that would spotlight: Black excellence, scholarship, research, and community. The inaugural Black Scholars Institute (BSI) at UWindsor, was formally launched in September 2024.

Dr. Clinton Beckford, UWindsor’s Vice President of Equity, Diversity, and Inclusion, envisions that the BSI will be the institutional home for Blackness at the University. “The establishment of a Black Scholars Institute at the University of Windsor is ground-breaking and transformative,” he says.  “It positions the University of Windsor as a post-secondary leader in intellectual thought and practice around Blackness and makes real our commitments to Black flourishing and thriving at and beyond the institution.”

The BSI will work closely with UWindsor’s Interdisciplinary and Critical Studies Department within the Faculty of Arts, Humanities and Social Sciences. Building a Black Scholars academic program represents an innovative plan of action intended to meaningfully understand UWindsor’s approach to African-Caribbean ways of knowing in Canadian universities. The expected output will enhance UWindsor’s research profile in Black Studies and feature scholarly work, special events, speakers’ series, mentorship, and more.

Dr. Camisha Sibblis, the Director at BSI, is hopeful that the institute will enrich the experiences of Black faculty at UWindsor. “We believe that the inclusion of Black peoples, ways of learning and knowledge systems are integral to the growth of our community. The establishment of the BSI is a crucial part of fulfilling the University’s Strategic Mandate Agreement (ontario.ca) and purposefully moving the institution into the future. The Institute will enhance the University’s research profile and will also establish the University as a center of excellence in Windsor-Essex and the Detroit area – a region known for its historic importance for Black people in North America.”

Welcome to the Black Scholars Institute—where excellence thrives, and liberation is pursued through scholarship, research, and community engagement.

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